Well, I last posted a week ago that we were sending Kami to St. Martin to have an MRI. She did go with Josh as her security guard. The problem was that Kami became extremely sick due to all of the medicine that she was on. Let's just say that the plastic bag that I told her to take with her didn't go to waste on the boat ride back!
Her MRI came back negative and the doctor here is stumped....just as were the other 6! She ended up consulting with some disease specialists on the island of Martinique. They recommended that Kami go on a Morphine treatment. They idea is that everything else has "seemingly" been examined except for a disease of her nervous system. Certain neurological diseases attack the nerves and cause extreme pain. So if the doctors were to "shut down" her body via morphine, the nervous system would have a chance to heal.
The morphine treatment lasted only 1 night. Kami became too sick from the medicine with severe migraines that the doctor told her that she needed to stop. She then recommended that Kami return to the states. We also received a call from a doctor in the U.S. that also recommended that Kami return to the states and schedule an appointment at the Mayo Hospital.
So we decided to get one more blood test to help us make a decision. We had that done yesterday (Thursday) and there was some good news. Her white blood cell count was now normal as was the rest of her numbers except for her ESR's. But they had come down over 30 points (although 65 is still extremely high).
We saw this as a vast improvement even though Kami still isn't feeling any better. We are hoping that there will be some difference in the near future and we are also going to have a special treat on June 1st. Kami's parents are coming for a visit and our whole family is excited. After they leave, we will see how Kami is doing and do another blood test. If things are the same, we will need to make a decision about sending her to the Mayo Hospital. But for now, it will be good to have her parents here. Our kids are needing a break from helping daddy take care of momma and are needing some time to get out of the house. This will be a great change of pace for them.
Until next time...
